Jul 26, 2011

I needed a sign

I had a rough day with Damian yesterday.

I needed a reminder that I need to be patient and accept what comes with autism.

Yes Damian is high functioning and I hear all the time from parents of kids with and without autism that we are lucky that he can talk, communicate with us and function quite well. Yes I do remind myself of that but his disability no matter where it is under this "umbrella", comes with challenges for ALL of us.

Autism is autism. Stop putting a band-aid on it. I need to face it head on and ACCEPT.

He was taken off of his medication for health reasons and that may be a coincidence or a cause. Not sure yet.

I was tired of the arguing and negotiating when it was time to practice shoe tying.

He had a near meltdown because Max was in the same room with him while he read.

I didn't have dinner on the table at 5:30 and this caused many outbursts.

I was impatient and frustrated for most of the day mainly because he wasn't on MY timetable. His disability gets in my way and takes my time. I need to remind myself to ACCEPT and give thanks to the Lord and remember the good.


You Need a Sign

Treasure him…

You need a sign.
What better one could I give
than to make this little one whole and new?
I could do it; but I will not.
I am the Lord and not a conjuror.

I game this mite a gift I denied to all of you-
eternal innocence.
To you he looks imperfect,
but to Me
he is flawless,
like the bud that dies unopened
or the fledgling that falls from the nest
to be devoured by the ants.
He will never pervert or destroy the work
of My Father’s hands.

He is necessary to you.
He will evoke the kindness that will keep you human.
His infirmity will prompt you to gratitude
for your own good fortune.
More!

He will remind you every day that I Am who I Am,
that My ways are not yours,
and that the smallest dust mote whirled in darkest space
does not fall out of My hand.

I have chosen you.
You have not chosen me.
This little one is my sign to you.


I used to wonder why God would send a child down here to Earth with a disability and severe challenges in life. Then I met Damian.

When God created human life, he did so in his image; loving, accepting, generous, kind and patient.

I needed that sign, that reminder of ACCEPTANCE.
..............
xo

1 comment:

Nana***** said...

God bless you all! You are the most important people to me including your brother of course. You are my hero Marisa, so proud of all you do and the difficulties you have overcome. I am endlessly amazed. Love you much!